A Neurodiverse State of Being
Today was meant to be a sonnet
“More Like the Butler than the Baker”
Lincoln Oliphant
Planning to an excess
I schedule paratransit rides days in advance
know exactly where accessible restrooms lie
expect a friend to arrive on time
“If you say noon, let it be noon.
“No, I’m not impatient,
“lateness is rude.”
(Do I blame my brain or my military officer dad? Both?)
check MyChart daily so no appointment is missed
guides required in this fractured life.
Dyscalculia, dysgraphia, “She doesn’t pay attention.”
No one knew about “masking,”
but that’s where my attention lay.
Pretending “normalcy” requires attention.
Make up your mind: I can pay attention in class,
or I can try to appear “normal.”
There has never been enough of me to do both.
Unless with horses or dogs,
my brain communicates confusion
misunderstandings prevail –
“I heard what you said.”/”That’s not what I meant.”
leave me as frustrated as they do others.
Why is my world so literal?
Absurdism and hyperbole weave through my writing;
few comprehend, others are offended.
Monkey wrenches tossed into an agenda
put this brain in freeze frame.
Adjusting to complications comes hard –
a fraudulent debit card charge and an ableist credit union
a cancelled ride to Aldi
storm induced power outage
my printer died
pharmacy sent the wrong test strips
“Yes, I sent my financial documents; you lost them.”
CRPS in my left leg and now the left side of my head?
days and days in a dark bedroom
a hat and sunglasses to walk the dogs
Ubrelvy did nothing; this isn’t a migraine
the anger of my irritable bowel.
10 thoughts on "A Neurodiverse State of Being"
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I’m sorry! You may have wanted a sonnet (the day is not over lol) but this poem examines in close detail the way a brain and body can work (or not work). I appreciate the attention and focus you laid out for the reader. Horses or dogs? Why is that? Thanks for sharing during the dark times!
For some reason, dogs and/or horses have healing and coping impacts for people who are neurodiverse. Hippotherapy is amazing.
Relatable! “guides required in this fractured life.”
Ah, friend, you get it! <3
Pretending normalcy— relatable. Thank you for sharing.
Thank you, Shauna!
Great per-moment account of living on the other side of ableism. Hard to capture the infinite vectors of that life. Well done. For anyone who needs to know, in a non=labor state a disabled person’s best friend is the FTC complaint website :).
Ah, yes, when my credit union wouldn’t help with the money taken from my banks account, I filed with the fraud division at the KY AG’s office (they have a special division for seniors), AND they told me to file with the FTC, which I did. I’ll probably never see the money. (The “website” associated with the charge on my bank statement gave me a huge “FRAUD WARNING.”) Other folks have had similar issues with that credit union. They and I have changed banks!
This is so good
you bring me along in your day
and let me know (a tiny bit)
of what’s going on
Thank you so much, Jim!