An Only Slightly Saccharine Poem
You are beginning to forget
the feeling you once had
to eat and not think about the effect
food will have on your body.
People slide a filter
on top of your life
once they discover you have
diabetes;
your weight is suddenly
understandable
and every choice while eating
comes under scrutiny.
They assume you do not exercise
and enjoy three times the recommended
sweets.
They do not even care
that there are different types of the disease,
different origins, different causes.
Those people know the relative they had
who lost a leg after years
of self-abuse and shame,
and they equate your reality
with theirs.
Even if you do follow
at least one or two of the stereotypes,
those ideas repeat inside your head
the longer you keep yourself alive,
the very chemical you knead into your flesh
adding to the proof others claim
as evidence of your unwellness.
Others don’t see the days
you clawed back against malaise
or the times you could have lain barely conscious
but chose to give others your energy instead
or the nights you cannot sleep
worrying that not even a seizure
will wake you up the next morning.
You may have been
marked for death
at age twelve,
but that story was one
you did not follow either.
One thought on "An Only Slightly Saccharine Poem"
Leave a Reply
You must be logged in to post a comment.
This is really nicely done, thanks for sharing it. The constancy of dealing with disability is hard to convey on a page in a way that someone nondisabled could understand. I can’t say whether this does it since I’m disabled, but it sure gets closer than a lot I’ve or than anything I’ve written. Invisible disabilities with visible manifestations that get in the way for other people are complex things, and as a person who has a condition for which exercise is highly counterindicated (which is 100% not an excuse…I’m a former very dedicated mover and it’s very hard to function or manage mental health when you can’t move a lot), I know how hard it is for one’s movement life to be mis/understood.
Really nice tribute to somebody. Great job.